By: IPP Bureau
Last updated : April 17, 2026 4:55 pm
The national platform brought together healthcare professionals, patient advocates, and stakeholders
Leading clinicians and policymakers at the Initiative on Haemophilia Care X (IHC X) called for a nationwide shift toward early diagnosis, preventive treatment, and stronger healthcare infrastructure to transform haemophilia management in India.
The national platform brought together healthcare professionals, patient advocates, and stakeholders under the theme of advancing care and empowering patients, with a clear focus on bridging access gaps between urban and rural regions.
Experts highlighted that while haemophilia care in India has evolved from plasma-based therapies to advanced clotting factor treatments, significant challenges remain in awareness, diagnosis, and equitable care availability.
Dr Tulika Seth from AIIMS noted that increasing adoption of prophylaxis and improved access to diagnostics enable a transition toward more predictable, patient-centric care. “Haemophilia care in India has evolved significantly over the years, driven by a deeper understanding of the disease and its management."
"We have moved from an era of plasma-based treatments like FFP and cryoprecipitate to a much more advanced therapeutic landscape, with greater availability of clotting factors and newer treatment options that are improving patient outcomes," Dr Seth added.
Echoing the need for systemic improvements, Dr. Sheikh Bilal of Government Medical College, Srinagar, stressed that many patients remain undiagnosed due to low awareness and limited diagnostic readiness. He emphasized that strengthening laboratory infrastructure and expanding screening initiatives are critical to improving outcomes.
"A significant proportion of patients remain undiagnosed, reflecting gaps not only in community awareness but also in diagnostic readiness within the healthcare system. Diagnosis is the first and most crucial step to care without it, effective treatment cannot reach those in need," said Dr Bilal.
Dr Parul Bhatt from GMERS Medical College, Ahmedabad, pointed to growing momentum toward early detection, including prenatal screening and timely evaluation of bleeding symptoms, while underlining the importance of expanding access to prophylactic therapy across regions.
"Looking ahead, approaches such as home-based therapy and simplified treatment options offer the potential to improve accessibility, especially for patients in remote areas. Strengthening awareness, expanding infrastructure, and prioritising preventive care will be key to advancing haemophilia management in India," opined Dr Bhatt.
Stakeholders at the summit agreed that a multidisciplinary, patient-centric approach—supported by policy interventions, capacity building, and innovations such as home-based care—will be key to ensuring equitable and sustainable haemophilia care in India.