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Results For "rare-diseases"

142 News Found

Healthcare policymakers lay thrust on genetic screening and indigenous therapies for rare diseases
Public Health | May 05, 2026

Healthcare policymakers lay thrust on genetic screening and indigenous therapies for rare diseases

Under the new policy, financial assistance has been increased to Rs 50 lakh per patient to improve treatment access


India tackles rare diseases head-on at landmark summit in New Delhi
News | March 12, 2026

India tackles rare diseases head-on at landmark summit in New Delhi

Industry leaders highlighted the pharmaceutical sector’s role in advancing research, innovation, early screening, and multi-stakeholder collaboration


Need to include ASMD as a notified condition in the National Policy for rare diseases
Policy | October 20, 2023

Need to include ASMD as a notified condition in the National Policy for rare diseases

ASMD is highly variable and the age of onset, specific symptoms and severity of the disorder can vary dramatically from one person to another


Takeda to strengthen health system for rare diseases in India
News | May 19, 2023

Takeda to strengthen health system for rare diseases in India

These initiatives aim to improve access to healthcare for rare disease patients


Sanofi reaffirms commitment to rare diseases in India
News | February 28, 2023

Sanofi reaffirms commitment to rare diseases in India

Receives Subject Expert Committee recommendation to bring new therapies of Pompe, ASMD to India


Dr Sheela Nampoothiri appointed as co-chair of ICMR's Rare Diseases expert committee
People | March 08, 2022

Dr Sheela Nampoothiri appointed as co-chair of ICMR's Rare Diseases expert committee

Dr Ratna Puri from Sir Ganga Ram Hospital, Delhi is the Chairperson of the expert committee.


Sanofi India partners with NHM MP to expand NCD, rare disease services
News | May 08, 2026

Sanofi India partners with NHM MP to expand NCD, rare disease services

The partnership will focus on diabetes and NCD awareness, rare disease screening, and deployment of mobile medical units


Illumina showcases multi-omics potential to advance precision medicine in India
Biopharma | May 08, 2026

Illumina showcases multi-omics potential to advance precision medicine in India

The company highlights role of integrated genomics and multi-omics research at the Illumina Multiomics Summit India 2026 held in New Delhi and Bengaluru


Yashoda Medicity unveils specialised thalassemia care centre in Uttar Pradesh
Hospitals | May 08, 2026

Yashoda Medicity unveils specialised thalassemia care centre in Uttar Pradesh

The facility combines advanced diagnostics, bone marrow transplant evaluation, prenatal awareness, and multidisciplinary support services